3.09.2015

Thank You . . .


Good morning, I cannot thank you enough for the outpour of support I've gotten! All of your emails, comments, thoughts, and prayers mean so much to me. I am beyond grateful for your kindness. After the segment, my inbox was flooded with questions, reactions, concerns, etc. So I thought I'd take the time to answer them here: 

What's the name of your gene/condition?
My gene mutation and condition have yet to be classified since I'm the only documented case. There is a list of differently ranked candidate genes that researchers are looking at - but cannot say for certain until a match is found in another person with a similar condition.

What symptoms did you feel?
The most common symptoms I'd feel were chest pain (with radiating pain in my throat and sometimes left arm), nausea, and fatigue. The biggest tell tale sign for me was severe chest/throat pain during activity.
*Please note that symptoms are different for everybody. If you suspect anything feels off, consult your doctor immediately. 

How do you stay positive through it all?
The most important thing to me was to make sure that the people around me were weren't sad. I could see the worry in the faces of my family, friends, even doctors sometimes - and I knew that if I stayed strong, calm, and positive it would help them feel better too. So I used that as a tool. A smile goes a long way, and I always make sure to smile as much as possible. Even when I was feeling my worst. And when I couldn't smile anymore, I'd take a nap :)

What do you do to stay healthy now?
I make sure to eat healthful foods, stay away for saturated fats, drink plenty of water, get a full night's sleep, and most important: exercise daily. Physical fitness is key to good heart health. It keeps the muscle strong and can even help your heart build extra capillaries.

Do you have any limitations with your condition?
No, I can live my life exactly as I want.

Why did you start your blog?
There was a time when I did have limitations. I couldn't travel or go to work or even take a jog outside. So I decided to make the most of it and take advantage of being stuck in NYC. I've learned so much about the city along the way, and now I use my blog to chronicle those experiences and share them with others - whether they're long time residents or visiting tourists.

How has your life changed since this all started?
Apart from taking a bunch of medications twice a day and monthly doctor visits, I feel lucky to say that I've been able to resume a normal lifestyle. I will say that I've become much more heath conscious, but I think that's expected. I'm just so thankful to be feeling well.

I hope this helps answer your questions.
If there are others, please feel free to leave them in the comments section below.

Thank you for reading, happy Monday!


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